Sorry it has been awhile since we have wrote, it has been busy. We have been spring cleaning and what not. It turns out Arek did have a broken foot after all. It was 2 minor fractures on the top of his foot. The doctor said he did not need a cast that the fractures should heal fine without it. They gave us a boot cast but Arek refused to walk or even stand with it on. We took it off and he is running and jumping around like nothing happened. Amazing the pain tolerance of this little guy. Lauren is still in track for special Olympics. she is running the 100 meter and doing the softball throw. She is pretty fast can’t wait to see her compete. Lisa and I have been writing a few articles on Associated content. Lisa is training for a new job hopefully it will work out. Brett is still owing people in his games as he calls it, maybe pwning them whatever. He is doing good in school made the honor roll again. School is almost out and it will be fun to see what we could do this summer. Amanda is walking and talking really good she is following simple commands quite good. Alissa has been a pretty good model for her to follow. Alissa has been playing with Lauren outside more and that has been great to see them bonding. Brett is attempting to bond with Arek hopefully he can it will be so beneficial for both of them. We have watched a few good movies since we last wrote. Untraceable was pretty good as was Avp requiem. We are going to watch The bucket List and a few other movies soon.
Archive for April, 2008
Living with Autism update
Sunday, April 27th, 2008Individualized Education Plan
Monday, April 14th, 2008
Individualized Education Program
The (I.E.P.) Individualized Education Program is a very important document for the education of your child. An IEP is required for all children who are eligible for Special Education. The IEP is determined through a team effort and must be reviewed at least once a year. In order to have an IEP written, your child must be eligible for Special Education. According to federal law, A multidisciplinary team must determine that:
1. Your child has a disability
2. Your child requires Special education and any related services to benefit from the general education program.
IDEA (Individuals with Disabilities Education Act) is a federal law that requires certain information to be included in the IEP. Different states and local school districts may have additional information; forms differ from state to state and will vary from school district to school district within a state. It is recommended that you find out your specific state laws from your actual state resources.
IEP Team Members:
1. The parents who provide insights that only you the parents can about your Childs strengths and weaknesses. Make sure to give your ideas about your Child’s education.
2. The General Education teacher(s) who can provide information on what is expected and your child’s ability to meet expectations.
3. The Special Education teacher, who will be providing services to your child, preferably has training and experience in teaching individuals with disabilities. They work with the other teachers to plan modifications to your Childs education.
4. The school districts Special education coordinator who has the authority to commit resources and services.
5. If needed a person to explain the results of your Childs evaluation.
6. Any experts such as therapist, psychologists etc… That may be invited by you or the district.
7. When appropriate your child.
The IEP
The IEP is not a contract but a guarantee of the necessary services and supports that have been written and agreed to for your child.
The IEP must contain at least this information:
Current levels of Performance
All information about your child’s strengths and weaknesses are presented by you the parents, teachers and any school personnel who evaluated your child. Results of the various tests are reviewed. Included are state, district, and individually given tests. Concerns such as language development, social skills or behavior should be discussed, as well.
Goals
Goals are established that are measurable and can reasonably be accomplished by your child in one year’s time. The goals should be based on your child’s present level of performance and address their needs resulting from their disability. Goals must help your child progress in the general education curriculum including academic, behavioral, social, self sufficiency and any other education needs. Goals are not geared toward maintaining skills or reaching above grade level performance. Law states that a child’s IEP must have “a description of how the child’s progress toward the annual goals … will be measured and when periodic reports on the progress the child is making toward annual goals will be provided”.
Special Education and Related services
The school districts obligation is to provide your child a (FAPE) Free Appropriate Public Education in The Least Restrictive Environment (LRE). The team determines how to give your child the most appropriate education with or without students who are not disabled. Special Education is the services your child receives not the actual place they receive them. Depending on your child’s needs there are a few options including Special Education classrooms and General education classrooms with aids.
Also included in the IEP are:
1. To what extent your child will interact with disabled and non-disabled children in the school.
2. If your child needs aids to take state and district tests or take different tests altogether.
3. When, where, how often and how long services will begin and continue
4. Any necessary transition services needed when the child turns 16.
5. Supports and methodologies for behavior management if your child’s behavior interferes with their learning or the learning of their peers.
6. Communication needs
7. Special modifications in the educational setting.
8. Assistive technology if needed to receive a FAPE.
9. Language needs if your child is not able to speak English
Parents role at the IEP meeting
I know personally the first time I attended an IEP for my daughter I was scared and nervous and overwhelmed to say the least. Sitting there with all the teachers’ experts and the like, I basically just shook my head yes like I was child myself. You cannot do that! Here are some ideas to help you participate more effectively in the IEP meeting.
1. Try to keep in contact with the child’s educators so you have a better idea of what to expect from them at the meeting. I recommend sending a notebook to school and asking it be filled out every day with some info on how your child did that day.
2. BE PREPARED! Yes I am yelling it is so important. Write down any thoughts, ideas or concerns you have. Stay focused on the main issues your child has. Any information you provide should be included in the IEP.
3. Bring someone with you preferably your spouse or significant other. A friend or family member. You need a support system also.
4. There are no stupid questions. Ask questions if you don’t understand something. They have to make sure you understand everything and must provide an interpretation to you.
5. Do not let emotions take control of the meeting. If emotions become an issue stop the meeting and try to continue at another time. Emotions can get in the way of an effective IEP and only your child suffers from that.
6. You should sign to show that you participated in the meeting. You still have the right to disagree with the goals of the meeting if you need to take the IEP home for review and modify it later.
IEP’s are reviewed at least once per year. If you or the school district feels the need for a meeting sooner it should be requested in writing. It is your right to withdrawal your consent for services but should only be done if you have been recommended by a legal advocate. That is the basics of an IEP and the meeting involved. Below you will find some links for further information. I have also provided links to books that are highly recommended.
YouTube account Support Autism
Tuesday, April 8th, 2008Hello how is everyone today. Good I hope We just created a Youtube account. We will be posting videos about Autism as well as of our family. Perhaps we will do something crazy like is popular on YouTube. Arek is doing good he is limping a bit but not too bad overall. Brett is doing good in school and has beaten his latest video game Call of Duty 4. Lauren is doing well she hasn’t had track practice do to lousy weather for a week now. Alissa is doing good talking and walking and learning everyday. Amanda is walking good playing with the others pretty good. She still doesn’t want to go to sleep at night the last couple of nights we have had to put her to bed with us. We have been watching hell’s kitchen and American idol is getting good. The moment of truth is sure interesting as well. It seems that Television is always coming up with something to make you watch. We almost had an interview with a local Television station but it seems they blew us off. Oh well I guess. All in good time. We are working on new designs for our shirts. Lisa has been writing for Associated Content as well as some other websites. I think she has found something she likes doing.She doesn’t have to worry about being on the phone and having us children in the background making noise. If things go as I suspect they will she is going to make a decent amount writing. I am so proud of her. We had to get rid of one of our cats today because the landlord said it is against policy to have 2 cats. It has been a tough decision. I know I am all over the place it is just one of those days I guess. Well got to go try and get the kids back to sleep. Until next time see ya! oh yeah our Youtube link is http://www.youtube.com/SupportAutism
AreksDad
aka Brad
To the Hospital With Our Autistic Son we Go!
Saturday, April 5th, 2008Today was a very interesting day. It was a pretty good and peaceful day for most of it. Arek wasn’t feeling that good so he stayed home from school. He was pretty happy and we enjoyed spending time with him. He was his active self. We enjoyed trying to play ball with him. That boy has got an arm! It was a great beginning to a great day!
Later, right before dinner, he jumped off the table in the Living Room and hurt his foot a little bit. He cried, but not very long. We didn’t really notice anything really wrong at the time. When dinner was done, we told Arek to come into eat. He just sat and cried by the gate. Usually he would hop right over the gate and run in the kitchen to eat. This time was different. I had to go and pick him up and carry him to his chair. I though that was a little strange. I still didn’t think anything of it.
After we were all done eating, we noticed that Arek just wanted to stay seated in his chair. If you know Autism, you know that just does not happen. I tried asking him what was wrong but it’s hard with Autism and him not being able to tell me what was wrong. My husband than remembered that he had gotten hurt earlier so we looked at his foot again. This time we noticed it was quite swollen. My husband tried to put him down to stand but Arek refused to. We could tell he was in pain.
We decided to take him to the hospital. Not to be funny but we were a little happy that it was his foot hurting because he wouldn’t be running all over the hospital like a mad man. He was loud with some of his screams but at least he wasn’t running all over throwing things. You know how Autism can be. We actually got in pretty fast. He had to get x-rays. That was a little tough but we got it done. He covered his ears with some of the sounds he heard but other than that he was an angel. They told us that nothing was broken that they could see. It’s sometimes tough to see in children that young. They said that he had sprained it. They wrapped his foot and put a special shoe on. He is supposed to keep it on for a couple of days. We’ll see if that will happen. He has to have a follow up appointment on Monday.
We are so thankful that his foot is not broken. It was a scary thought. I’m glad that things turned out all right. Autism is so scary because they have higher pain tolerance than us. It broke my heart that he couldn’t tell us what was wrong either. I’m so glad that we figured it out. The poor kid is limping around though and it hurts him. I wish I could take it away for him. He mostly just laid around until he fell asleep after the hospital. Hopefully he’ll walk on it a little more tomorrow. We’ll let you know how that goes. Thanks for listening to me babble.