Family Update

March 18th, 2009

The weekend went well Lauren’s team won the state championship. The family bonded and enjoyed a camp fire on both Sunday and Monday nights. It was fun Brad, Lauren and I all went and gathered wood around the local country roads. Nature provides plenty of wood that has fallen to the ground no need to buy it. Monday night we had a possum enter our yard but we startled it and it left. Arek still making progress in communicating. He has major sensory issues which we are working on. We still all waiting for an attorney for the eviction we are facing on march 23rd. We hired an attorney to represent us in the personal injuries suffered by our family. Hope it works out cause the attorney gets 33&1/3.  today I found out a local teacher who from the comments posted about her suggest was a great teacher was dismissed y the school board for what amounts to personal differences between herself and the principal. Discrimination charges were filed before this incident which makes you wonder what the motivation behind the firing really was. Autism rating today was mildly stressful Arek was pretty good all day. he still strips down to diaper as soon as he gets home from school. He is in school for only 4 hours a day but it is long enough he needs to stim when he gets home. Autism education reform is still desperately needed as far as training and equipment here in canton. the schools do what they can with what they got. We still have not received our income tax or SSA stimulus payment. Financially we are under water and the bubbles are slowly leaving our lungs. certainly we could use some more income and better budgeting. The past 6 months have been very trying on us as a family and hopefully the end of our struggle is soon. I am still taking medication which helps some but does not perform miracles. I am i the process of finding a psychiatrist. My therapist is great his name is Dr. Phil. been trying to spend more time with the family and less time endlessly fighting the travesties I have been subjected to. It is a strain on our family and almost to the point of just giving up which for me is nearly impossible.  That is all for now write more later as info comes along.

Update on Arek

March 3rd, 2009

Arek is coming along so great. He is talking now at least somewhat. He listens sometimes and has stopped taking his diaper off for the most part. He gives hugs and kisses and calls his family members by our names well very close. He still has sensory integration issues we call him superman cause no matter how hard we try to prevent him from damaging something he still manages to do it. He actually lifted the computer desk up with the computer and monitor on it.  Luckily only the computer case and one hard drive was destroyed. The computer is no longer accessible to him it is currently in the basement. until i can secure the computer desk and devise a way to secure the computer and monitor.  Got to get some sleep will update more soon.

Lauren is still playing Special Olympics basketball and is going to the Illinois state championship march 14th to play for state championship in her teams division. My baby is going for second Gold metal in a row they won last year. She is looking forward to track. Go Lauren you are so awesome and inspiring to watch, my little angel.

until next time,

Brad Smith

Still fighting the discrimination

March 3rd, 2009

Well today I went before code, HUDthe county zoning board and presented the need for a building inspector in Canton, IL It has been awhile since I have written but in a nutshell we were evicted in Dec. 2008 and are still fighting the Fulton County Housing Authority in a 3 count complaint with the Illinois Dept. of Human Rights. They handle claims on behalf of HUD in Illinois. well in Dec we found a place to go 3 days before being homeless. We were so grateful and happy a 4 bedroom house, jacuzzi tub, full basement huge fenced in backyard. Our excitement quickly went to terror when our landlord turned out to be slumlord ghetto style. She not only refused to fix serious safety concerns with electrical, plumbing, and structural defects. Lisa actually fell through a basement stair and got a nice big ugly bruise. we had to fix the stair the landlord refused to. We charged the landlord $100 for replacing the 2 stairs and the landing which were so rotted i do not know how they did not fall sooner. We by this time had notice many safety concerns and fire hazards which the landlord refused to fix. and threatened to evict us for making the repairs. Luckily I had contacted the fire dept. and they did a walk through, the police dept. also had seen the unsafe conditions. Being the way i am I refused to just sit and wait any longer. Out of fear of something bad happening to y family I made many desperately needed repairs to the property The landlord will be getting a bill for the repairs as In Illinois thier is a right to repair act which covers this situation.

Anyhow today I went to the county board because in the course of this situation I discovered the lack of a residential building code. No building inspector to call. The city of Canton has a police officer who handles code enforcement. The poor guy would quickly be overwhelmed had all the code violations occurring actually been reported. Despite retaliatory eviction laws landlords usually successfully evict tenants who complain about unsafe conditions. This evening I went in sat in on the city council meeting and it was very informational. I challenge everyone who reads this to go to your next city council meeting it is not as boring as people would have you believe.  I typed a letter to the city council and provided pictures of some of the violations of the gash and bruise to my leg when i feel through a rotten spot in the floor of the kitchen. Thank God the council was presently hearing a motion on establishing a building code and inspections. I have been granted access to speak next Tuesday at the next board meeting.  So wish me luck. I am pleased that the city is working on fixing this flaw and look forward to working with them in developing a policy.  I love this city. All of you out there living in unsafe conditions stand up and talk to your local government they do wish to help you as it is the reason they are elected. To all you landlords out there Keep your property up to code and safe at the very least. It is inhumane to put people in a position of danger and charge them for it.

 

Until next time

Brad Smith

 

Tough times ahead

December 14th, 2008

Well it is Our oldest son Brett’s birthday he is a teen now at 13. Have a very well planned birthday for him compliments of his auntie. I lost my eviction case after fighting for just about 4 months and now the whole family is being thrown out. on December 18Th at 5.00pm. Merry Christmas. My fireworks posed an “unnecessary risk” according to the judge. My wife and kids are being kicked out because I paid rent in October and November. Yes that is right my family is being put on the street for having a small amount of fireworks and paying rent. Wish us luck as we are looking for a house to live in before then so we do not have to move twice. Arek will be 5 on the 16Th. He is doing good actually talking more and comprehending some simple commands. Lauren just played her holiday hoops tournament for the Special Olympics and did really well. Hopefully it will not be her last game. Wish us luck that we may find a place, move, pay the deposit and first months rent and buy Christmas presents all at the same time.

Why do People Discriminate ?

October 13th, 2008

It is a tough thing to deal with discrimination. It is almost built into our society. Americans generally look down on poor people from America. They look at us like it is are fault. The same people donate to families in similar situations in other countries. i admit there are some people who are just free loading and riding the system. Although since Clinton The system has been more strict. Discrimination based on a disability is more grey of an area. Generally people with a physical disability that is noticeable are not discriminated against as much as say a person with Autism or Schizophrenia. A person missing there arms or legs people can see it tangibly. A person with Autism on the other hand might and often looks normal and at times acts normal. So people that are very superficial think that a child is just being a brat or the parents are bad. People like myself look and act normal most of the time yet are mentally disabled and struggle with daily routines, memory, and anxiety. We suffer from really obsessive behavior and really depressed times for no apparent reason. We can be fine for a period of time and then be stuck in our heads for a period of time. The point is from the outside I can see how one might think somebody like myself is just lazy or less than them. I appear and at times can be very normal very intelligent and witty. I worked my whole life until 2004 at that point in time I began the downward spiral of depression. I have always been bipolar, manic depressive and suffered from anxiety. I just skated by in life and did not know I was different then anyone else. i thought everyone was like me. In 2004 I first lost my good paying job of 5 years. My first natural born son had been born and I nearly lost my right hand in an accident at work. My wife was pregnant with our daughter Alissa and i couldn’t wipe my but for a month. It took that long to get comfortable with my left hand as I am right handed. We went from a middle class family to a poor family in a matter of months. We were getting behind on bills and rent and I began to withdrawal inside myself. I did not realize it and my mind had put on a good front as to hiding my feelings. I completely lost confidence in myself and for the first time I realized something was wrong with me. Yet i did not know what to do and tried to remain strong. Jobs were slim and temporary and i began to become more and more withdrawn and paranoid about being hurt at work. I was loosing control fast of my mind and there was no turning back. I became so scared at work of being hurt I was super careful as in really slow at doing my job. Today’s society slow is not an option you got to put out more for less period. I began to have physical symptoms of pain and irregularities in my biological functioning. Somewhere around this time in late 2004 I slipped completely out of reality and into my head and was stuck on auto pilot. Now people who knew me knew something was not right but couldn’t put a finger on it. They thought I was lazy or something I don’t know. When you are mentally disabled you are  stigmatized as lazy or dangerous or less than. People really do not realize that a mental disability is just as disabled as those with physical disabilities. Mental disabilities are hidden from the mask of superficial light. Those who are struggling are afraid to admit they need help and hide and struggle alone. They do not want to be labeled or look down upon. They eventually get help usually the hard way. They have a breakdown or worse kill themselves. Why do people discriminate? i believe it is because deep down they see a part of themselves in the mentally disabled person. It scares them so much that they deny it could be possible and by default deny that the mentally disabled can be true. They go with the flow of society and ignore the moral feelings that are in every human been and eventually they do not have the moral feelings anymore and become cold and hardened to the society they belong to. They give to other countries to make themselves feel justified about themselves. Stop discriminating people look right out in front of you and when you see a part of yourself in the lazy no good faking sob mooch stop and realize that in the blink of an eye it could be you . You can become the one you deny exists. The question is do you believe you are a no good mooching lazy sob? No you are struggling and you are disabled and you are working really hard to over come the difficulties you are facing. You are looking up to the people who you were at one time standing side by side with and seeing the disgust and despise in their eyes and you can’t understand how they could look at you that way, how they could treat you that way? You then realize they are doing the same thing you wee doing and you feel worse about yourself. You then beat yourself up and make things worse. Finally you get the ah ha moment and realize something is wrong with you and you ignore the stares and the disgust and you seek help and you attempt to get better. If you are lucky your therapist/doctor get your meds right the first time and you begin to mentally feel better and you begin to put the pieces together of the puzzle that is your life. You begin to get confident and help yourself and others. You become a human being again and work on the difficulties and gain support from your loved ones. You realize that you may never fully recover , yet you realize that by learning coping techniques and new routines you can have a semi normal life. If you are like most though the meds are wrong the first few times and you become a human test subject. You may become worse than before you were treated. you may develop a personality that you have never had. You may slowly lose the support and trust of your loved ones. Your spouse may give up on you. You will struggle to stand back up over and over again and try over and over again to take the step down the right path. Eventually if you don’t do yourself in first you find the path you see the light and you walk painfully one step at a time at first. Only you may notice the difference and you slowly began to walk that path and you start feeling confident and things go pretty well for awhile. This is the crucial point you must not wander from the path cause you are centered and on a very thin line. Keep doing what has worked and keep taking your meds. Gradually the path will become a trail and eventually a road. The road back to were you started in civilization. Now maybe you would think twice about that mentally disabled person trying to find their way. You may have compassion for them and understanding and give them a hand up not a push down. You may stand up for them and speak out against the people discriminating. You have come full circle and are now centered. you do not see yourself as right or wrong, good or bad. You see only truth and humility. You see the circles people are in and notice they are all at a different stage in that circle. You pray that they find there path and make it to the center. They see that they are the same as you and everyone else. They see that life is more than what type of car you drive or where you live. How much money you have or who you know. Who is tougher and who is weaker. They see that everyone is all of these things in one aspect or another. That given time and observation they will be where you are and you will be where they are. So the answer to why people discriminate is simply fear. Fear of admitting that they have had the same problem or might have the same problem you have. It is said that people plan by their hopes and dreams but live according to their fears. I know i have a problem and though i keep standing up and brushing myself off I am still blind and unable to see the path i must walk. i am getting closer as my eyes are starting to see. Please do not discriminate or push down on people like me, Pull us up and remind us of our dream.

Update on Arek and Autism

October 7th, 2008

It has been awhile since I have updated everyone on Arek’s journey with Autism. He is now 41/2 years old and in his 3rd year of early Childhood Education. He now has begun to speak much more than ever. He will point at certain things like cars, planes, trucks and say “looky that” The other day he spontaneously went up to us with a toy and said the color of it. Shocked and impressed we clapped and told him good job. He then proceeded to do this for about a half hour with different toys and 8 different colors; Red, orange, yellow, blue, pink, white, purple and green. He has just amazed us over the past month or so. He will say on occasion “thank you” and will ask for his “cup” or the name of a food like “hot dog” or “cocoa puffs”.He has been somewhat better about wandering into the street or far from where we are at. He loves school.

OK, now the other changes we have noticed are not so good he has become more temperamental and self injurious. He will bite himself and throw things as hard as he can while screaming. Generally it is only a matter of his sibling or anyone taking something he wants away from him. Being almost 5 and Autistic I guess his tantrums would be similar to those of a 2 year old. Only he is much bigger and stronger and bites himself not others.  Lauren is doing good in school and Brett of course is doing great at school. Alissa is quite the conversationalist. Amanda is developing normal so far she walks talks eats with utensils and throws tantrums like the rest of the 2 year old chidren I know.

The Battle Continues

October 7th, 2008

Well tomorrow I have a court date to determine if I will be separated from my family. I had some fireworks and the landlord who is discriminatory is trying to evict me. I have a case open against her from the HUD dept. in my state. It started out as I mentioned about the discrimination against my son and my wife and I. HUD said it would be difficult to get her because she merely threatened us. They did take the case when they found out I was being evicted. I strongly believe she is using the fireworks as an excuse and that is why their is an investigation going on. Most people out here had fireworks and the kind that were not legal in this state . Everything I had was purchased down the street legally from a local fireworks dealer. So wish me luck.

Discrimination of Autism child.

September 13th, 2008

Hello it has been awhile since I wrote and I apologize. We have had quite a bit going on here at the home front. First and most important is our landlords discrimination against us and our child. On August Th 2008 our son had what we would call a little fun with his poop and our maintenance man happened to see it. We had just seen it as well. Our landlord was told and stormed to our apt. not 10 minutes later. We had just cleaned up the loose stuff and secured the children. We then had prepared the cleaning tools for the walls ceiling and carpet. Our landlord came demanding to be let in and see. she did not even go into our living room but merely glanced over he gate and in disgust yelled unacceptable this is unacceptable. You are unacceptable. I was stressed and offended at her lack of professionalism and decided to take it outside. i told her we would go outside cause i did not want my children exposed to her yelling at us. Also I wanted a smoke. i told her we don’t smoke in the house and she snarled and pointed toward the living room and said well why not you might as well. We went outside and she continued to tell us we were unacceptable and that we would have to move out. She then told us we were bad parents and how we have to raise our child. She completely lost her cool and professionalism and I am now in the process of filing a lawsuit against her and the housing authority. The next day the maintenance man returned and checked if we had cleaned the mess which we had and agreed it was fine. End of story right. Wait maybe we would receive a notice of housekeeping violation as the lease stipulates. No nothing good it is over right? The following Tuesday morning we are awakened by a knock at the door and to our surprise it was DCFS demanding to come inside. I kindly asked the lady to have a seat outside and explain to me what she was here for. I asked if she had received a complaint that we had poop on our walls. She said yes and that we were accused of locking our children in the living room , leaving them home alone and living in filth. I explained to her as I explain to everyone who is uninformed about Autism. Our 4 almost 5 year old son is moderate/severely Autistic and has many sensory seeking habits that we have been working with him on since we can remember. one of which is playing with his poop. She then interviewed my wife my son and my daughter. She then walked through our apt. and did not find anything that concerned her. she did not find any problems with our housekeeping. So now our landlord not only discriminated against us,she harassed us with DCFS over a matter she knew was already taken care of. Anyone else out there ever have any discrimination on your disabled child’s behavior.

Living with Autism update

April 27th, 2008

Sorry it has been awhile since we have wrote, it has been busy. We have been spring cleaning and what not. It turns out Arek did have a broken foot after all. It was 2 minor fractures on the top of his foot. The doctor said he did not need a cast that the fractures should heal fine without it. They gave us a boot cast but Arek refused to walk or even stand with it on. We took it off and he is running and jumping around like nothing happened. Amazing the pain tolerance of this little guy. Lauren is still in track for special Olympics. she is running the 100 meter and doing the softball throw. She is pretty fast can’t wait to see her compete. Lisa and I have been writing a few articles on Associated content. Lisa is training for a new job hopefully it will work out. Brett is still owing people in his games as he calls it, maybe pwning them whatever. He is doing good in school made the honor roll again. School is almost out and it will be fun to see what we could do this summer. Amanda is walking and talking really good she is following simple commands quite good. Alissa has been a pretty good model for her to follow. Alissa has been playing with Lauren outside more and that has been great to see them bonding. Brett is attempting to bond with Arek hopefully he can it will be so beneficial for both of them. We have watched a few good movies since we last wrote. Untraceable was pretty good as was Avp requiem. We are going to watch The bucket List and a few other movies soon.

Individualized Education Plan

April 14th, 2008

 

 

 

Individualized Education Program

The (I.E.P.) Individualized Education Program is a very important document for the education of your child. An IEP is required for all children who are eligible for Special Education. The IEP is determined through a team effort and must be reviewed at least once a year. In order to have an IEP written, your child must be eligible for Special Education. According to federal law, A multidisciplinary team must determine that:

1.     Your child has a disability

2.     Your child requires Special education and any related services to benefit from the general education program.

IDEA (Individuals with Disabilities Education Act) is a federal law that requires certain information to be included in the IEP. Different states and local school districts may have additional information; forms differ from state to state and will vary from school district to school district within a state. It is recommended that you find out your specific state laws from your actual state resources.

IEP Team Members:

1.     The parents who provide insights that only you the parents can about your Childs strengths and weaknesses. Make sure to give your ideas about your Child’s education.

2.     The General Education teacher(s) who can provide information on what is expected and your child’s ability to meet expectations.

3.     The Special Education teacher, who will be providing services to your child, preferably has training and experience in teaching individuals with disabilities. They work with the other teachers to plan modifications to your Childs education.

4.     The school districts Special education coordinator who has the authority to commit resources and services.

5.     If needed a person to explain the results of your Childs evaluation.

6.     Any experts such as therapist, psychologists etc… That may be invited by you or the district.

7.     When appropriate your child.

The IEP

 

The IEP is not a contract but a guarantee of the necessary services and supports that have been written and agreed to for your child.

The IEP must contain at least this information:

Current levels of Performance

All information about your child’s strengths and weaknesses are presented by you the parents, teachers and any school personnel who evaluated your child. Results of the various tests are reviewed. Included are state, district, and individually given tests. Concerns such as language development, social skills or behavior should be discussed, as well.

Goals

Goals are established that are measurable and can reasonably be accomplished by your child in one year’s time. The goals should be based on your child’s present level of performance and address their needs resulting from their disability. Goals must help your child progress in the general education curriculum including academic, behavioral, social, self sufficiency and any other education needs. Goals are not geared toward maintaining skills or reaching above grade level performance. Law states that a child’s IEP must have “a description of how the child’s progress toward the annual goals … will be measured and when periodic reports on the progress the child is making toward annual goals will be provided”.

Special Education and Related services

The school districts obligation is to provide your child a (FAPE) Free Appropriate Public Education in The Least Restrictive Environment (LRE). The team determines how to give your child the most appropriate education with or without students who are not disabled. Special Education is the services your child receives not the actual place they receive them. Depending on your child’s needs there are a few options including Special Education classrooms and General education classrooms with aids.

Also included in the IEP are:

1.     To what extent your child will interact with disabled and non-disabled children in the school.

2.     If your child needs aids to take state and district tests or take different tests altogether.

3.     When, where, how often and how long services will begin and continue

4.     Any necessary transition services needed when the child turns 16.

5.     Supports and methodologies for behavior management if your child’s behavior interferes with their learning or the learning of their peers.

6.     Communication needs

7.     Special modifications in the educational setting.

8.     Assistive technology if needed to receive a FAPE.

9.     Language needs if your child is not able to speak English

 

Parents role at the IEP meeting

I know personally the first time I attended an IEP for my daughter I was scared and nervous and overwhelmed to say the least. Sitting there with all the teachers’ experts and the like, I basically just shook my head yes like I was child myself. You cannot do that! Here are some ideas to help you participate more effectively in the IEP meeting.  

1.     Try to keep in contact with the child’s educators so you have a better idea of what to expect from them at the meeting. I recommend sending a notebook to school and asking it be filled out every day with some info on how your child did that day.

2.     BE PREPARED! Yes I am yelling it is so important. Write down any thoughts, ideas or concerns you have. Stay focused on the main issues your child has. Any information you provide should be included in the IEP.

3.     Bring someone with you preferably your spouse or significant other. A friend or family member. You need a support system also.

4.     There are no stupid questions. Ask questions if you don’t understand something. They have to make sure you understand everything and must provide an interpretation to you.

5.     Do not let emotions take control of the meeting. If emotions become an issue stop the meeting and try to continue at another time. Emotions can get in the way of an effective IEP and only your child suffers from that.

6.     You should sign to show that you participated in the meeting. You still have the right to disagree with the goals of the meeting if you need to take the IEP home for review and modify it later.

IEP’s are reviewed at least once per year. If you or the school district feels the need for a meeting sooner it should be requested in writing. It is your right to withdrawal your consent for services but should only be done if you have been recommended by a legal advocate.  That is the basics of an IEP and the meeting involved. Below you will find some links for further information.  I have also provided links to books that are highly recommended.